Today showed more progress. Paul had dialysis this morning and has again doubled his urine output. :) He walked a half loop around the PCU and did a great job sitting in the chair. I wasn't there for that part, but he managed to recline and un-recline himself several times and adjust his legs when they weren't comfortable - that's good that he can do it on his own, I think I might be helping him too much...
Tonight, we noticed that he had somehow lost his dialysis port. It had been pulled out. I'm guessing it happened when he was getting in and out of the chair - the nurses put their arms under his and help him get up, I bet they inadvertently tugged on it. I am also wondering if it wasn't stitched in. I didn't notice any stitches anywhere like they had fallen out, so I wonder if they were ever there. Paul was pretty upset about it coming out - mostly because he doesn't want to have to get it put back in. The nephrologist said it shouldn't be a problem for him to skip dialysis until Monday so they'll get him in Monday morning to put a new port back in and then start on dialysis again. If his blood numbers take a dive before that, they'll do it sooner, but if all goes well - no dialysis this weekend - woohoo! I'm hoping we can capitalize on this time to get him out of bed and walking twice a day.
The doctor today said something about moving him up to the rehab floor next week. I'm going to ask tomorrow why we're waiting. If our goal is to move, shouldn't we work on that in the place most advantageous for that? And now that he won't be having dialysis this weekend, I don't see why we can't just move on up another floor now. We'll see how that goes.
Ben had his 15 month check-up today. He is perfect! He weighs 23.0 lbs, is 31" tall, and has a 47cm head. He's measuring right on track as he always has been. Dr. V said that's great because they usually see kids drop off the curve a bit when they start walking and being more active - must be all the cheetos and cookies he's been getting at G&Gs... :) He had been tugging on his ears yesterday and this morning, so I was worried about another ear infection, but she said they looked great. He's probably tugging because of his teeth coming in. The poor little guy had to get 3 shots AND have blood drawn. I didn't realize that the blood tests weren't common to all one year olds until I started telling people he had blood drawn. He was supposed to have it done at 12 mo, but he had an ear infection so they postponed until now. They are going to test hemoglobin levels, anemia, and lead. He ended up with bandages on both arms because they couldn't get a good vein the first time. He cried and cried, but he was a champ and was his happy normal self in no time.
I'm off to bed - I've stayed at the hospital tonight, hopefully this chair is comfortable enough to get some good rest. At least I'll know what it feels like to be the expectant dad sleeping in the hospital chair. :)
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